The Nature of Family Engagement in Interventions for Children With Chronic Conditions
- PMID: 27596106
- PMCID: PMC5581947
- DOI: 10.1177/0193945916664700
The Nature of Family Engagement in Interventions for Children With Chronic Conditions
Abstract
Recognizing the bi-directional relationship between family functioning and child well-being in the context of childhood chronic conditions, researchers have tested family-focused interventions aimed at promoting both child and family well-being through improving the family's condition management capacity. Based on a sample of 70 interventions for families in which there was a child with a chronic physical condition, this analysis examined the nature of family engagement in the interventions. Data were extracted from the intervention reports using a standardized template; conventional content analysis was used to describe family engagement. Interventions varied in focus, structure, and level of family engagement. Investigators most often sought to improve condition control or management, with parent engagement focused on improving capacity to manage the treatment regimen. Few investigators addressed capacity building in the context of family functioning. Recommendations are made for reporting standards for family-focused interventions and for enhancing the family systems grounding of interventions.
Keywords: child; chronic condition; family; intervention.
Conflict of interest statement
Similar articles
-
The Contribution of Parent and Family Variables to the Well-Being of Youth With Arthritis.J Fam Nurs. 2015 Nov;21(4):579-616. doi: 10.1177/1074840715601475. Epub 2015 Aug 29. J Fam Nurs. 2015. PMID: 26318728 Review.
-
Parenting interventions for childhood chronic illness: a review and recommendations for intervention design and delivery.J Child Health Care. 2015 Mar;19(1):5-17. doi: 10.1177/1367493513496664. Epub 2014 Jan 31. J Child Health Care. 2015. PMID: 24486817 Review.
-
Attachment-based intervention for maltreating families.Am J Orthopsychiatry. 2008 Jul;78(3):322-32. doi: 10.1037/a0014070. Am J Orthopsychiatry. 2008. PMID: 19123751
-
Strengthening the parent-child relationship: a review of family interventions and their use in medical settings.Child Care Health Dev. 2005 Jan;31(1):25-32. doi: 10.1111/j.1365-2214.2005.00446.x. Child Care Health Dev. 2005. PMID: 15658963 Review.
-
Family pediatrics: report of the Task Force on the Family.Pediatrics. 2003 Jun;111(6 Pt 2):1541-71. Pediatrics. 2003. PMID: 12777595
Cited by
-
Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature.Int J Pediatr. 2023 Nov 24;2023:9392040. doi: 10.1155/2023/9392040. eCollection 2023. Int J Pediatr. 2023. PMID: 38045800 Free PMC article. Review.
-
Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review.J Fam Nurs. 2023 Nov;29(4):395-416. doi: 10.1177/10748407231165119. Epub 2023 May 2. J Fam Nurs. 2023. PMID: 37128884 Free PMC article. Review.
-
Psychological interventions targeting mental health and the mother-child relationship in autism: Systematic review and meta-analysis.Dev Med Child Neurol. 2023 Mar;65(3):329-345. doi: 10.1111/dmcn.15432. Epub 2022 Oct 8. Dev Med Child Neurol. 2023. PMID: 36208472 Free PMC article. Review.
-
In-hospital interventions to promote relational practice with families in acute care settings: A scoping review.Health SA. 2022 Feb 14;27:1694. doi: 10.4102/hsag.v27i0.1694. eCollection 2022. Health SA. 2022. PMID: 35281289 Free PMC article. Review.
-
An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study.JMIR Nurs. 2022 Jan 4;5(1):e32785. doi: 10.2196/32785. JMIR Nurs. 2022. PMID: 34780344 Free PMC article.
References
-
- Applegate H, Webb PM, Elkin TD, Neul SKT, Drabman RS, Moll GW, Jr, Megason G. Improving parent participation at pediatric diabetes and sickle cell appointments using a brief intervention. Children's Health Care. 2003;32(2):125–136. doi: 10.1207/S15326888CHC3202_4. - DOI
-
- Askins MA, Sahler OJ, Sherman SA, Fairclough DL, Butler RW, Katz ER, Phipps S. Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer. Journal of Pediatric Psychology. 2009;34(5):551–563. doi: 10.1093/jpepsy/jsn124. - DOI - PMC - PubMed
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Other Literature Sources
Medical